Meet Milan, a motivated 15-year-old from Athens, GA. He loves the world of sports and is a tough competitor no matter the game. He enjoys playing soccer with this teammates and pick up basketball with his friends. However, Milan’s playing days were brought to an abrupt halt after being diagnosed with Castleman TAFRO.
Castleman TARFO is a disease that remains incompletely understood, due to its rareness. Only a few individuals in the US have received this diagnosis and a single treatment strategy has not yet been established. Milan will live with this condition for the rest of his life, but has been blessed with an extremely knowledgeable doctor.
Milan’s fighting spirit is what sets him apart. After his first chemo treatment he lost feeling in his face and was unable to show a lot of emotion. He took that side effect on as a challenge and made sure it did not stop him from smiling during his conversations with others.
Milan admires professional athletes that play fiercely and persevere through challenges. He embraces this mindset daily to make sure his goal of getting back to playing sports is accomplished. He states, “nothing will hold me back from accomplishing my dreams!” Milan’s sports dream is to attend a Liverpool F.C. game and have a VIP experience!
